Wednesday, May 19, 2021

Unreasonable thoughts on Career and Cancer

Hello, first of all, I am still alive and well (as far as I can tell...)

"Career" is possibly the most irrelevant thing  after a Glioma diagnosis:

Bottom line: Although I am currently submitting a (what I like to believe) potentially high-impact paper  to "Nature Genetics" (if that will go in is a totally different question) I am currently without a job.  (and so is my wife, scientists' lives are unstable) Luckily, here in Germany the social system is good and my heath insurance affordable. 

But now unemployment benefits are running out, so we are very seriously considering to move back to the US/California (despite of all concerns with insurance and so on...), where we both see better chances for a job in Biotech than in Germany (Industry in Germany does literally not even look at your CV when you are over 35.) (-experience-??, -hello-??) 

I had come back to my home country mostly for family reasons: my mom was old and had a stroke. (She has passed away in the meantime).  Now I unexpectedly  find myself considering such a big step as changing continent again(!)
Consequently (here comes the cancer-aspect), this brings up an ugly question: With my "preexisting condition" is that still "worthwhile"? Being all-too-familiar with the long-term outlook of Anaplastic Astrocytoma. Every Neuronocologist would tell me "Oh, you're crazy, just accept your luck, settle in, get a small job to support yourself, and enjoy the time you have." But I guess I AM crazy. I cannot let go that I do think that there is something I still have to do rather than retire. I also find myself thinking, have I not since the beginning tied my struggle against cancer  to a struggle to get back to my science?  Maybe its working what keeps me alive and as soon as I let go the guard, the "monster" will be back and finish its job in an instant?  I never expected these questions would ever arise (because I did not expect to live that long, honestly). But that is what happens now. 
Of course, thats just part of still being alive: problems everybody else faces too, except they don't have this CUT in their life, when "they" told you, ok, thats it, by all we know, you're done. And they do not write a blog about it.

One important consequence of this thinking and re-thinking is whole issue is of course: I will need a rational basis for any decision. So despite of everything I wrote before: I will need to have an MRI again. after not going for a while, I am NOT looking forward to that. 

 I apologize for (in this post) moving away from trying to be helpful for cancer patients, as this clearly is just showing that despite of all, my life goes on, well, maybe this is at least inspiring.  So at this point I cannot tell where the next step of my twisted journey will take me. 
And maybe the MRI will just put an end to all these plans and deliberations. But somehow I do not think so. with this outlook I say to everybody reading this, the "fight against cancer" goes on.  With what I do (as a scientist) and also within my own head. Different from the first aspect (science), the second is mostly sitting and hoping , so not much of a "real" fight.... 

With this "split perspective", let me conclude the post. Everybody reading this, keep it up. I hope to be be back after I had my MRI! (scary) Hopefully with at least the outcome, that I can keep going for a while longer. 

 

Take care, Thomas :-)

6 comments:

  1. Thomass,
    I hope your MRI went well. This past year has been hard for so many people that you must not take it personally. Here in the US business is recovering as we get more people vaccinated for COVID. Germany did a much better job managing COVID last year, but now is lagging a few months behind us on vaccines (my friend there just got her second shot, and she's over 60). I have faith that things will return to near normal once COVID subsides.
    I am really glad you decided to get another MRI.

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  2. Thomass,
    I hope you are well.
    Having another MRI this week myself reminded me to check whether you had posted since May. I hope no news is ok news.
    Best wishes for you and your family,
    Chris

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  3. I met another long haul anaplastic astrocytoma person this week. His latest scan showed signs of regrowth after 10 years clear, so he is looking at surgery and treatment again. His doctor is hopeful for a good outcome.

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  4. I very much hope you and your family are doing well, regardless of your MRI results.
    I'm coming up to 3 years since my own "incident" and 35 months since resection of my tumor, which turned out to be a Grade 3 AA.
    Your experience has been an inspiration and a sign that some kind of normal life is possible after this diagnosis.
    So, if you get a chance, please post a short message. If you would rather stay off blogs, maybe we could communicate by email.

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  5. Thomas,
    I hope you and your family are doing well, and that no news on your blog is good news. I just wanted to check in and say your story has been an inspiration to me and my family, as I come up to another scan.
    Ich wünsche dir alles Gute.
    Chris

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  6. It's GBM awareness day.
    I hope this message finds you well and that you have had some progress with jobs.
    I am going in for another scan this month, mainly to confirm that a surgery I'm contemplating is worthwhile - there doesn't seem to be anything going on with my AA3. But every scan is a chance to be proved wrong.
    You probably realize this, but you are a bit of a unicorn. 18 years out and healthy is kind of a miracle, job or no job. Please tell your story - to ABTA, to the UCLA medical school, whatever.
    GBM tumors are getting more attention now, which is a good thing, but the truth is that AA3 tumors are just as deadly, just take longer to kill us.
    Be well and enjoy your family.
    Best wishes,
    Chris

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